Dear Zervas parents,
We are a new family in the Zervas neighborhood and our daughter Eliya is in Kindergarten at Zervas. Some of you know, some of you don’t but Eliya’s brother Eytani, our 3.5 year old son, has Duchenne Muscular Dystrophy. DMD is a severely progressive and 100% fatal muscle wasting disease. Boys with Duchenne are typically in a wheelchair by 10 and it takes their lives in their late teens, early twenties. There are no treatments and there is no cure. We moved to Boston from London as my husband left his career in banking to start a biotech company to accelerate treatments and find a cure to save our son and the thousands of boys like him. If you’d like to read more about our story, here are a couple recent articles.
There is a drug called eteplirsen that has been in a clinical trial in DMD boys for over 2 years that has proven safe and effective and is seeking accelerated approval with the FDA. If eteplirsen is not granted approval, this will add years to the development process, I simply cannot stand idly by and watch my son grow weaker. I am writing in hopes you will each sign this electronic petition (and, of course, ask your family and friends to do the same!). Your support in signing this petition means the world to our family.
PETITION (it takes 2 minutes!)
Thanks so much in advance and best wishes,
Mom to Eliya (in Kindergarten at Zervas) and Eytani
Zervas READS! It’s not too late to be part of our “Caught Reading” welcome board at Zervas. Catch yourself and your children reading in these last days of summer, and share your reading adventures with the whole community! Check out the Zervas Library website for more details about where to send snapshots of summer reading (and writing!) in action: http://www2.newton.k12.ma.us/~erin_broderick/. Creativity is encouraged! Pictures can be emailed to firstname.lastname@example.org or brought into school during the first week.
Thanks to all that have sent in their photos and videos! More photos/videos are still needed, please continue to send them in until March 16th.
Pictures and Videos: The Yearbook and Slideshow will include photographs of all the 5th grade students during their years at Zervas. To accomplish this, we need your photographs of the students (large and small group shots are ideal) in class, at recess, during field trips, performances, anywhere at Zervas, from Kindergarten through the Fabulous Fifth Grade! Send in 6-10 of your best group pictures.
Baby Photos: A favorite part of the yearbook – Guess the baby! Send in one photograph of your child when they were a baby.
Pictures may be submitted as:
• JPEG (at least 600 dpi or highest resolution possible). Email photos to email@example.com (general pictures) or firstname.lastname@example.org (baby pictures).
• PRINT (please put your name in the back if you would like the picture to be returned to you after we scan it). Pictures may be dropped off at the office.
Videos: in any format you have to email@example.com .
Send in all pictures and videos by Friday, March 16!