Dear Zervas parents,
We are a new family in the Zervas neighborhood and our daughter Eliya is in Kindergarten at Zervas. Some of you know, some of you don’t but Eliya’s brother Eytani, our 3.5 year old son, has Duchenne Muscular Dystrophy. DMD is a severely progressive and 100% fatal muscle wasting disease. Boys with Duchenne are typically in a wheelchair by 10 and it takes their lives in their late teens, early twenties. There are no treatments and there is no cure. We moved to Boston from London as my husband left his career in banking to start a biotech company to accelerate treatments and find a cure to save our son and the thousands of boys like him. If you’d like to read more about our story, here are a couple recent articles.
There is a drug called eteplirsen that has been in a clinical trial in DMD boys for over 2 years that has proven safe and effective and is seeking accelerated approval with the FDA. If eteplirsen is not granted approval, this will add years to the development process, I simply cannot stand idly by and watch my son grow weaker. I am writing in hopes you will each sign this electronic petition (and, of course, ask your family and friends to do the same!). Your support in signing this petition means the world to our family.
PETITION (it takes 2 minutes!)
Thanks so much in advance and best wishes,
Annie Ganot
Mom to Eliya (in Kindergarten at Zervas) and Eytani
